Experiences with Multiple sclerosis (MS)

This page shows detailed information about a disease such as statistics, patient reviews and related articles.

Also known as:
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ICD10/11 Code: G35
ICD10/11 Group: G00-G99, Diseases of the nervous system
reviews
Multiple sclerosis (MS)
Also known as: ---
ICD10/11 Code: G35, ICD10/11 Group: G00-G99, Diseases of the nervous system

Read our patient's reviews about Multiple sclerosis (MS)

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Most used drugs for this disease


Reviews from the most used drugs for this disease

Copaxone

6/30/2018 | | 49moderated by Henry
Glatiramer (40mg/ml) for multiple sclerosis (MS)

since ive begun using copaxone i haven't had problems with my MS. Despite having two cases of necrosis while using the drug, i am continuing to sue it because it works so well.
> read full review...

Copaxone

6/27/2018 | | 46moderated by Charlotte
Glatiramer (40mg/ml) for multiple sclerosis (MS)

I spray myself three times a week, takes a while to get used to, but ive been using it for two years now and have no complaints. Severity of the spot in question has definitely not gotten worse. My only complaints are the few side effects, such as, itch, red spots, and spray spots, this usually goes away after three days though.
> read full review...

Tecfidera

6/5/2018 | | 20moderated by Henry
Dimethyl fumarate (240mg) for multiple sclerosis (MS)

Ive been using tecfidera for a month now and ive felt very tired ever since i started taking it. I also sometimes feel flush.
> read full review...

Tecfidera

10/5/2017 | | 45moderated by Susan
Dimethyl fumarate (240mg) for multiple sclerosis (MS)

Haven't had any more attacks, but had a lot of flushes. And since I've been taking it I'm always hungry and I'm putting on weight. Anyone else noticed this side effect?
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Avonex

9/12/2017 | | 24moderated by Philip
Interferon beta-1a (6me) for multiple sclerosis (MS)

I took Avonex because of my problems with MS. Lots of relapses in a short space of time so I decided to get the injections. With the auto-injector from Avonex. Now and then it was a bit unpleasant to inject myself because I didn't always get it in the right place and I bled a little bit. Luckily this was only 2 or 3 times and the rest were fine. But I still sometimes got relapses even with the ...
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Tecfidera

4/16/2017 | | 55moderated by Susan
Dimethyl fumarate (240 mg) for multiple sclerosis (MS)

I use it in treating my MS and find it very beneficial. At the start I had 2 infections which multiplied to 15 within 2 months but now after a while all infections are reduced to a minimum.
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Aubagio

11/7/2016 | | 45moderated by Susan
Teriflunomide (14 mg) for multiple sclerosis (MS)

I started using Aubagio in January. I was very scared of side effects, but luckily I have had no side effects at all. I prefer this medicine to Avonex, which I have used before, because having to inject myself with a inch long needle every week was not pleasant. However I am not able to say if its really effective, maybe there is no effective medicine for MS.
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Tecfidera

10/31/2016 | | 27moderated by Henry
Dimethyl fumarate (240mg) for multiple sclerosis (MS)

Half way through August I started taking tecfidera. Started with 2 x 120 mg per day. After two weeks I got terrible stomach pains. They lasted for about 4 or 5 days and I was just about to stop taking it. But then they went away again after 4 or 5 days and it hasn't come back again. After that, I was increased to 240 mg and haven't had any other problems with it. Ultimately I am glad I stuck wi...
> read full review...

Tecfidera

10/13/2016 | | 44moderated by Henry
Dimethyl fumarate (240) for multiple sclerosis (MS)

In the beginning I had tonnes of hot flushes and red rashes all over my face, upper body and legs. Starting slowly helped a bit (4 weeks 2 ipv). Later that was reduced a bit. After half a year I was used to the hot flushes. I felt better, was more alert. Stable MRI. Main problem I found was the joint and muscle pain I developed. It's not been proven that this was caused by the Tecfidera but I'm...
> read full review...

Baclofen

10/3/2016 | | 44moderated by Charlotte
Baclofen (10mg) for multiple sclerosis (MS)

I've recently started on the maximum dose, 3 tablets a day. When I was on a lower dose, I had less trouble with side effects. But now I'm finding the drowsiness really difficult to deal with. Because it's lost its efficacy and I don't want to have to take this any more, I'm also taking herbal remedies (mediweed) for the spasms and it's working quite well, but there is a lot to say about this th...
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Baclofen

9/28/2016 | | 53moderated by Philip
Baclofen (10mg) for multiple sclerosis (MS)

Baclofen meant I no longer had any spasms but it made me so tired that I could hardly function during the day. It was really hard for me to think clearly and it felt like my head was full of cotton wool.
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Avonex

9/14/2016 | | 37moderated by Philip
Interferon beta-1a (24me/ml) for multiple sclerosis (MS)

i have avonex injected every week, the last few years i did it myself with a pen. I also take dafalgan and brufen to counteract the flu-y feelings. In all the years I've only been ill a few times after the injection.
> read full review...

Copaxone

9/13/2016 | | 49moderated by Philip
Glatiramer (40mg/ml) for multiple sclerosis (MS)

Diagnosed in March 2010 and started this on January 2011. Find it fine, a lot less difficulty with fatigue, physical limitations have virtually disappeared and if not are at least stable. No further relapses. Have got my life back to quite a considerable extent.
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Copaxone

9/7/2016 | | 29moderated by Susan
Glatiramer (20mg/ml) for multiple sclerosis (MS)

I have been taking 20 mg copaxone a day since Jan 2016. I inject it by hand because I find the needles a bit clumsy. Since I started taking it, I've put on 10 kg and I'm retaining water. That's why I am switching to another medicine. Had 1 relapse since. The itch/pain after injecting gets more bearable the longer you're injecting for.
> read full review...

Aubagio

9/1/2016 | | 27moderated by Henry
Teriflunomide (14 mg) for multiple sclerosis (MS)

In the beginning it seemed to be doing a lot for me, was right in the middle of a bad relapse and it felt like this helped with my recovery. unfortunately after 3 months I had another 1. That's why I switched to something else that could keep my stable. As far as side effects go, I lasted a month before I got any but then my hair started falling out, sweating more than normal and suddenly put o...
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Tecfidera

5/19/2016 | | 34moderated by Charlotte
Dimethyl fumarate (240) for multiple sclerosis (MS)

One and a half years ago switched from Betaferon to Tecfidera. A relief that, after seven years, I don't have to to inject myself every day. For me, Tecfidera definitely have a better effect than Betaferon. Fewer relapses and the general feeling that my body has stabilised. Okay, so I do have daily problems with flushing. For this, I was advised to have an 'old-fashioned' aspirin half an hour b...
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Amitriptyline

5/10/2016 | | 40moderated by Philip
Amitriptyline (25mg) for multiple sclerosis (MS)

The nerve pain from the MS has not been reduced enough with the combination of amitriptyline and lyrica. That's why I've tried other medicines to see if they work better for me.
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Copaxone

5/6/2016 | | 54moderated by Henry
Glatiramer (20mg/ml) for multiple sclerosis (MS)

Injected copaxone for a year despite the severe effects. I went bald in places on my head after about 6 months. I found the injections very painful. It was really not easy to use because of the need to always inject into a different area according to a special schedule which I found difficult to maintain and the fact that I'm also a diabetic so I need to inject myself 4x a day made the whole th...
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Tysabri

4/11/2016 | | 37moderated by Charlotte
Natalizumab (20mg/ml) for multiple sclerosis (MS)

i have used this for three years with good effects no relapses no deterioration on my scan. but the most recent visit saw no improvement unlike in beginning. time for something different, after conversation with the neurologist. i'm now switching to aubagio.
> read full review...

Copaxone

2/19/2016 | | 46moderated by Charlotte
Glatiramer (40 mg/ml) for multiple sclerosis (MS)

This keeps my MS under control and everything is good for me. Not one single attack since I've been taking this. For me, injecting is just like cleaning my teeth, part of life and not a problem.
> read full review...

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